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In the autism community, vaccinations are a huge issue. This is due to potential heavy metal toxicity such as those relating to mercury and/or aluminum. Thus, as a functional medicine practitioner and one who does biomedical interventions for autism spectrum disorders, many times parents present to the office wanting to have their child tested for heavy metals and perhaps even to undergo chelation. In reality, many parents want to have their child undergo chelation many times without even having tested for heavy metals. That is, they assume that since their child worsened after vaccinations, mercury and/or aluminum toxicity is the key. Using this reasoning they want to chelate immediately. However, chelation is not something that can be entered into lightly. Chelation as defined by Wikipedia “is the administration of chelating agents to remove heavy metals from the body. For the most common forms of heavy metal intoxication — those involving lead, arsenic or mercury — the standard of care in the USA dictates the use of dimercaptosuccinic acid DMSA” or other chelating agents depending on which metal you are trying to remove. This article is to point out some preparatory steps and contraindications to chelation. When heavy-metals are chelated from the body many minerals are also removed from the body. Therefore, a period of remineralization has to be implemented. Thus, if the patient has a leaky gut syndrome and therefore possible malabsorption, it will be difficult to remineralize the patient in order to bring him back to optimal health and not cause further damage to the patient. The removal of toxins in the body takes place through the liver, the kidneys and the skin. Therefore, in any type of detoxification procedure including heavy-metal detoxification test involving liver function and kidney function should be performed prior to engaging in chelation. There is also the question of whether the lab work is being interpreted on a functional basis or a normal basis. That is the reference ranges used to interpret some of the testing on a functional basis are usually more stringent in order to verify optimal organ function as opposed to acceptable organ function. Clearly, if you’re going to engage in a detoxification process in which you’re going to strain the organs of detoxification you would want them to be functioning optimally rather than just functioning acceptably prior to engaging in the chelation. Much of the waste and toxins are eliminated through the urine and feces. The feces are eliminated through the colon. If the patient suffers from constipation then he more than likely has an increase in absorption of toxins in the colon. Therefore, it would make little sense to increase that toxic load with chelation in a patient who is constipated. In functional medicine, we are always describing a term called “total load”. That is the total sum of all the stresses on the body. That could be things such as heavy-metals, oxidative stress, dysbiois and yeast infection as well as malabsorption and malnutrition. In the case of a child with autism we know that something decompensated the system or increased that total load beyond capacity. As such, we would not want to do anything to increase the load further by creating a greater release of toxins in the body of which it is not able to process and eliminate. Thus, even if your child has tested positive for heavy metals, chelation is not something that can be rushed into. There are other processes which should be evaluated prior to engaging in chelation. Things such as leaky gut, liver and kidney function as well as general gastrointestinal health should be evaluated. From a parent standpoint, if your child suffers from constipation I would be concerned with proceeding with chelation. If you suspect your child has the leaky gut or has tested positive for leaky gut I would also be concerned with proceeding with chelation. As always this is general information for parents and patients and I always recommend that you seek out a qualified functional medicine practitioner who should be aware of these issues prior to engaging in any type of heavy-metal detoxification and/or chelation.
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Functional neurology and hemispheric integration therapy in the treatment of autism spectrum disorders at times uses a concept called the motor cognitive binding in the treatment of these children. This is based on the fact that balance and coordination are the number one comorbidity associated with these types of conditions. That is to say that the most common finding you see associated with autism spectrum disorders is a lack of coordination and difficulty with balance. If we look at the feed up system from the sensory receptors in the body to the brain we find out the motor system is a major input to brain stimulation. Proprioception, joint position sense and balance drive a considerable amount of electrical activity in the brain. One must know what position their body is in and where their body is in space in order to survive on this planet. Where your joints are, how fast your muscles or moving and where you are in relation to gravity are all important inputs that drive brain activity.
We know that the same pathways and circuits that smooth and coordinate movements also smooth and coordinate thoughts. This is the essence of motor cognitive binding. I like to tell people in my presentations, whether I am speaking to parents or professionals, that if you look at a child on the autism spectrum and observe how uncoordinated his movements are, this gives you a window into how uncoordinated their thoughts might be. The beauty of this concept is that it works backwards also. By smoothing and coordinating their movements ,we tend to smooth and coordinate their thoughts also. So we can use this as a window into the child’s mind in order to help him synchronized the timing and processing of sensory inputs and thoughts. This concept is partially responsible for some of the results of studies that one may read regarding the interactive metronome and improvements with regard to children with ADHD. Thus, any activity which improves coordination, rhythm, timing and targeting tend to be helpful in these cases.
This is a generality of course. Whether I am speaking to parents or professionals, I am always trying to make the point that specificity is the key with regard to helping these children. There are few generalities but each child tends to be different and unique with regard to his signs and symptoms. For this reason, when stimulating any sensory receptor in order to drive brain activity is imperative to be specific as you may inadvertently stimulate an area which can cause the child to regress or overstimulate that child and cause a regression also. Therefore, I always recommend before undertaking any type of activity involving a functional neurology approach that the patient consult with not only a doctor trained in functional neurology but also one that has experience dealing with children on the autism spectrum.
When dealing with children on the autism spectrum two common questions often come into play. They are “what does the child need to do to improve” and “what can the child do.” The second question at times can be further subdivided into “what the child can or cannot do and/or what will the child do.” Many times the children are capable of performing the exercises but are not willing to do so. This may be a matter of motivation and/or the child’s way of trying to maintain some control over the situation. Therefore, many times we use rewards in order to motivate the child to cooperate. I always say that the parents are the ones that know the child best and here is where they can be a great help. Thus, you have to find appropriate motivation for the particular child you are treating at the time. Also, the doctor must take into account that is the child advances and matures in thought. Therefore the same reward that motivated him in month one may not be enticing in month two. One particular reward that we like to use if possible with children is the Whac-a-mole game. We tend to use this toward the end of the treatment session or between activities which the child finds difficult. This game tends to be fun for the child and serves as a dual purpose of requiring some coordination, rhythm and timing. There are unlimited ways to stimulate various weakened pathways and circuits that are found in these children. The job of the doctor is to find out which path way needs to be stimulated, design a therapy to stimulate that pathway and then match it to the child’s level of function and behavior. We always like to make the therapy sessions fun so that the children do not dread coming in for therapy. This makes it pleasant for all involved. Below is a link to the Amazon site where the Whac-a-mole game can be purchased. Maybe you can use it to help motivate your child. Please remember that although this is a toy, if you’re using it for therapeutic purposes it is not a toy.
http://www.amazon.com/Hasbro-40509-Whac-A-Mole-Game/dp/B0001GDP00
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In my opinion, the gluten free diet is brutal but it seems everyday it is getting easier with all the new sites and recipes.
http://tried-and-truecookingwithheidi.blogspot.com/2009/07/bodacious-sugar-free-gluten-free.html
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I just got home from our summer conference here in Tampa. Everyone I talked to said they got a lot of information. I spoke regarding Hemispheric Integration Therapy as well as Functional Medicine with regard to Biomedical Interventions for the Autism Spectrum. Dr Knaus gave us some backround on himself as well as gave us some information regarding HBOT. Nancy Bentley informed us with regards to fermented foods and a diet which promotes digestive and general health. Suzanne Azizi ( I am a mother first) provided a passionate and inspiring story about her daughter and dealing with the educational system, IEPs and the law. The faciliies at the Children’s Board were excellent. Everyone seemed to have a good time a well as came away with some good information and it was free to all. So, I am happy with our first conference. Look for our next one!!
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Last week we had our support group meeting here in Tampa. I am so amazed and impressed with the store house of knowledge that some of our parents have regarding this broad and life encompassing subject that is the autism spectrum community. This subject is immense. I spend my time where I feel it is best allocated reading diligently about neurology or functional medicine. I have a family. I have a practice. Yet I still try to read at least an hour a night and more on the weekends. Yes, some people say I am a bit nerdy or boring because of this. For this reason I am so thankful to these parents that are really expert in subjects like I.E.P.s, home schooling, the law and legislative process and advocating for their children. Just listening to them share and help other parents is like having a private tutor on this subject. Thanks to all those who help, share and educate me and others.
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We recently had a mom who took her child in for allergy testing. The child is a low functioning autistic boy. She wanted to see if there was anything relating to food etc. that she should be avoiding in order to help her child progress. The child had standard allergy testing with all the little needle sticks in his back. After the testing, this child who had been making substantial progress with his hemispheric integration treatment (H.I.T), regressed back to almost the way he was on his first visit. He had more vocalizations and just overall regressed in many ways. The testing was negative and should then theoretically have had no affect on the child. The allergist was aware of the regression as he had noticed the child’s overall improvement since beginning the hemispheric integration treatment several weeks prior to the testing. He stated that he had notced the same type of regression reaction in some other children. He was going to talk to some colleagues about doing a study regarding this reaction. Most importantly for all of you is that he said there is a way to get allergy testing through a blood draw. By using a blood draw test as opposed to a needle stick test no foreign substances would be introduced into the patient’s body and therefore this regression could be avoided. I hope that this is the type of information that will be helpful to my bloggers and I hope to share with the community in addition to my knowledge of Hemispheric Interation Therapy, functional medicine and biomedical interventions. There are hundreds of stories like this out there that we can share and possibly help someone else somwhere else in the world. Please post. Please share. Please help.